Saturday, August 27, 2005


August 27

I am very tired today, even though I did get some sleep last night. Jamie stayed here at the hospital with Theo last night and is now at home napping. Theo is still stable, we are just waiting for the edema to continue to decrease and to see more and more higher brain function increase (voluntary movements, facial expression, visual tracking). They are going to do another CT scan either today or tomorrow to check on the swelling and the brain movement (hopefully more toward the norm). Everything else has remained the same. Little Theo is sleeping right now. They decreased his pain medication to see how he would respond and he got extremely agitated when the nurses were flushing IVs and clearing his breathing tube. He continued to fight and move and struggle, so to avoid his messing up any of his lines or tubes, he got a shot of ativan to calm the agitation. So he is sound asleep now. He looks very peaceful and sweet. He still has some hair--they didn't shave it all for the surgery-- but it is taped down under the bandages so he looks bald and the EEG leads left his skin irritated on his forehead, but he is still the most beautiful baby in the world.

I will be working 15 hours at the office next week and doing some work here from the hospital on laptop and with paperwork for about 15 hours to make up a total of 30 hours. I was told I could work 30 hours a week and keep my current benefits, but I must get back right away. I was out 12 weeks for maternity leave. How could anyone have forseen this would happen? The 30 hour a week schedule may work out pretty well. I can maybe work 10 hour days on Mondays, Wednesdays and Fridays while Jamie teaches his classes on Tuesdays and Thursdays, so one of us can be here every day of the week and both on the weekend. We are both holding up pretty well. All our wonderful friends and family have been just indescribably supportive, loving and helpful. Thank you all. Not to mention the thousands of people out there praying and meditating and chanting for all three of us--for healing and strength and faith. Thank you so much.

Again, we haven't got any news from pathology yet. We'll let you know when we do. Still no seizures and he continues to be on only the one medication for seizure. It is still looking good for now--just waiting and praying for the swelling to go down.

Keep up the prayers and love.


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