9/28/04

We went to see Dr. Ward today to have the sutures removed from Theo's shunt surgery. He didn't like that part too much but he did love the car ride and being in the stroller. He loves to go for rides. He is doing pretty well today. We are just taking things one day at a time. There isn't a whole lot to report. We are going in for another MRI on November 30th, a Wednesday. On Thursday, December 1st, we will meet with all the doctors to review the MRI and see what is going on with Theo's very special little head. We are concentrating now on keeping him as comfortable as possible, as content as possible. It's going pretty well, he is much more comfortable here than in the hospital. He sleeps on and off throughout the day but is awake and alert for several hours at a time. He usually sleeps most of the night. His last feeding is at midnight and ends at 1:00 a.m. so I usually stay awake until then and give him his morphine dose at 1:00 when his food is finished. Jamie usually gets up at 4:00 a.m. to give him his next dose. Sometimes Theo wakes up around that time and needs a diaper change, when this happens, it can take a while to get him back to sleep--he doesn't much like his diaper changed or to be disturbed. But he will usually fall back to sleep and sleep till about 8:00 a.m. Then he is fed again and given several of his medications. He naps on and off throughout the day. When he is sleeping he looks so peaceful.

We have decided not to publish Theo's custodial account number but to give our mailing address. If anyone wishes to send anything to contribute to his account, please send it directly to our home. Any checks should be made out to him. His full name is Thelonius Luther Helbert Fueglein, you can use the whole thing or just Thelonius Fueglein. If you send any checks addressed to either of us, we will still make sure it gets to his account, but it would save a step to send things addressed directly to him.
Our mailing address is:
527 North Sheppard Street
Richmond, VA 23221

We continue to be amazed at and grateful for the generosity of our friends and family. So many people have dropped off food and gift certificates for groceries and a couple of massages, our whole street got together and got us meals for a week from a local chef. I almost cried. We are so loved and supported and it means so much.

I am trying to continue to post regularly, about every other day. Things are a bit more hectic now, but they are settling down some.

Please continue to offer up prayers for Theo and for us.

All our love--
Karla